Hip Dysplasia - Support at last!
There is a lovely blogger and lady who I have followed
almost since my first days on twitter. Natalie runs the fabulous blog – The Devonista which covers life with her two boys and how she’s gone from a PR girl to
being a stay at home mum. When her second son was born he was diagnosed with
hip Dysplasia. Having gone and still going through it all she had noticed there
were no books for mums to help and six years when he was first diagnosed no
social media either. With this huge gap of support for parents she sat and
wrote Cast Life.
DDH – FINALLY HELP FOR PARENTS IS HERE
Developmental Dysplasia of the Hip (DDH) occurs when the
ball and socket of the hip joint do not fit snugly together and whilst it affects between one and three children in every thousand, information
and support is shockingly poor leaving parents feeling confused when a
diagnosis is made.
I know only too well that
whilst DDH is not
life threatening, it certainly is life changing and the earlier it is spotted
the less likely a child will suffer a life time of pain, disability and hip
replacements.
My son was diagnosed at nearly 5 months and we went from a life of
coffee mornings and baby massage to endless appointments, scans and operations.
I felt out of my depth and wanted know as much about the condition as possible
so I understood the treatments being offer and could see a way forward.
My initial search for information threw up horrific images and
worst-case scenarios that simply compounded my fear. There were no books, few
leaflets and as this was six years ago, the social media support that exists to
day simply wasn’t there.
Despite having endured three operations and endure many casts and a lot
of pain, a recent check up showed Lucas needed further surgery. As Lucas was
wheeled into theatre this November I was still receiving emails and messages
congratulating me on the launch night of my book, Cast Life – A Parent’s Guide to DDH’, which I was inspired to write by my amazing son.
Cast Life includes everything from clear explanations
about the condition and the treatments involved to the products available to
make life easier for children in casts. It also looks at family life, dealing
with emotions as well including first person stories and parent comments. Over
time I cobbled together information as we went along but didn’t ever find one
solid resource that offered me comfort and solace.
Professor N.
M. P. Clarke ChM, DM, FRCS Consultant Orthopaedic Surgeon, who wrote the foreword for Cast Life, commented, ““DDH is one of the
most common congenital abnormalities and it is remarkable that there is so
little information out there. This book is essential reading for the parents of
children with the condition, as well as health professionals working with them,
and I would love to see it in all clinics around the world.”
Cast Life isn’t loaded with medical jargon, but gives the reader the
knowledge and facts they need to get to grips with DDH so they regain a little
bit of control and power in what can be a tough situation.
I am not a medical professional, many did contribute to this book
however, but a mother who hopes her experiences and the determination of her
son and strength of her family will help empower others and offer them a little
solace.
Cast Life is available on Amazon and I have also set up a charity called
Spica Warrior (www.spicawarrior.org) offering information about DDH and 10% of
the book royalties will be going to this cause.
Natalie
Trice is an author, blogger and freelancer writer. As a mummy, wife, cat and dog owner she doesn’t get much free
time but when she does she’ll be found drinking coffee with friends, reading
glossy magazines and dreaming of living by the sea. Lover of heals, wearer of
trainers, she has many dresses but mainly throws on gym gear.
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